By the Way, I Have RA
I have written about the difficulty of disclosing about RA, especially at events like a Mayo Clinic Center Social Media conference. But we haven’t talked much about the other side: When we explain...
View ArticleI’m Not All Better, Just Too Polite to Whine; Yet Victory Is Still Sweet
Please don’t miss the news at the end of the post! I had to put A LOT on one page since it’s been a few days! My endocrinologist was so excited about my attending the ACR in November and winning the...
View ArticleRheumatoid Arthritis Severity Scale (RASS) Affecting Treatment Decisions?
Could the RASS Affect Treatment Decisions Dollars? A reader asks about doctor’s ratings of Rheumatoid disease being required by third-party payers (insurance companies, etc) presumably to justify...
View ArticleRheumatoid Arthritis Fatigue Is Not Just Being Tired
Recurrence of Rheumatoid Arthritis fatigue A couple of days ago an old friend came to visit: Rheumatoid Arthritis fatigue. All of a sudden on Monday afternoon, it felt like it was 2 a.m. and I should...
View ArticleNever Mind! 3 Lessons for Evidence-based Medicine and RA
Clash between patient voices and science? Previously, we talked about a controversy over evidence in medicine with the withdrawal of Avastin for breast cancer. It was also a vigorous discussion of how...
View ArticleInvisible Illness Awareness Video
Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much...
View ArticleIf the Gloves Come Off, We Might See the Irony of Rheumatoid Disease
What if the gloves never come off and no one ever knows. Then you end up with a serious disease that everyone thinks is no big deal; it’s just arthritis. But who wants to take them off? I sure don’t....
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